Age-related macular degeneration (AMD) is the leading cause of vision loss in older adults in the UK.
As optometrists, it’s essential to stay informed and connected with organisations that can offer resources, support, and up-to-date information for patients living with AMD.
Whether you’re looking to deepen your own understanding or to guide patients and their families toward trustworthy sources of support, here are seven essential organisations every UK optometrist should know.
The Macular Society is one of the UK’s primary charities dedicated to helping those affected by macular disease. They provide a wealth of resources, including information on current treatments, research updates, and living with AMD.
The RNIB is one of the UK’s largest sight loss charities, working to support people with a range of visual impairments, including AMD. Their services span practical advice, emotional support, and information on assistive technologies.
Fight for Sight is a UK charity that funds pioneering research into the causes and treatments for sight loss conditions, including AMD.
Their commitment to research means they’re a source of up-to-date insights on advancements in eye health.
Visionary is an umbrella organisation supporting local sight loss charities across the UK. They work with smaller, community-based organisations to deliver services to those with vision impairments.
Action Against AMD (AAAMD) is a collaborative initiative dedicated to finding treatments that can prevent or significantly slow the progression of age-related macular degeneration (AMD). It was founded by three major UK organisations: the Macular Society, Blind Veterans UK, and Sight Scotland Veterans. AAAMD unites these charities’ expertise and resources to fund and promote research focused on preventing AMD from advancing to the late stages, where it can cause severe sight loss.
Website: Action Against AMD
The College of Optometrists is the UK’s professional body for optometry, offering extensive resources for CPD, clinical practice guidelines, and patient care strategies. They keep members informed on best practices in managing AMD.
Guide Dogs UK is well-known for its guide dog program, but it also offers extensive support and services for people with vision impairments, beyond just mobility assistance.
Navigating AMD can be challenging for patients and their families.
As an optometrist, guiding them toward the right resources can greatly enhance their quality of life and empower them in their journey.
By partnering with these organisations, you can ensure your patients have access to reliable information, emotional support, and cutting-edge research, helping them manage AMD with confidence.
| Organisation | Key Offerings | Optometrist Takeaway |
|---|---|---|
| Macular Society | Patient support, helpline, CPD for professionals | Primary referral for patient support |
| RNIB | Vision rehab, tech guidance, emotional support | Broad resource for sight loss support |
| Fight for Sight | AMD research funding, webinars | Research updates and clinical trial information |
| Visionary | Local support network | Make patients aware of local sight loss charities |
| Action Against AMD | Research funding, public awareness initiatives | Focused research and data-driven AMD treatments |
| College of Optometrists | Clinical guidelines, CPD | Best practice for AMD management |
| Guide Dogs UK | Rehab, mobility training | Vision rehabilitation and family support |
By staying connected with these organisations, you’ll be able to provide comprehensive, holistic care for patients with AMD.